Out of the Zone

Well, I've referenced Michelle's "zone" a few times on here. Yesterday, she finally reached the breaking of the zone. They took Tyler down for surgery around 12:30 and he did not get out until almost 5:30. During that time, she received NO updates on what they were doing, how Tyler was, etc. It was extremely stressful for her.

They also reduced nearly all of his pain medication in half. You may remember from my earlier posts that Tyler has a very high pain tolerance and it took days to get his regimen to where it needed to be to keep him comfortable. Now that they are messing with that, Tyler is in A LOT of pain again, especially after yesterday's surgery...so much so that it brought his rock solid mamma to tears last night!

As for the surgery, they have decided to make closing his stomach their top priority. Warning: this will be the most non-medical explanation of what they did...they removed the wound vac and put something else in its place. It's a clear thing that they sew in the part of the stomach that is open. It will help to pull the skin together. They will slowly pull that closer and closer (through multiple surgeries) until they can close his stomach (or something like that). 

They aren't even talking about the cancer and Michelle hasn't even met an oncologist yet. This is not the path she was hoping for here. We thought they took the case because they thought they could do something with the tumor. The surgeon told her yesterday that they took the case so that they could close his stomach. She doesn't know where they stand with the cancer treatment. The lack of communication is very frustrating!!

We're sure they have a plan, and it doesn't look to be the plan we had hoped for, but we're still trying to trust these doctors for Tyler.

On a good note, Tyler was able to get some water and applesauce today! The first food in over 2 months!! They are going to work on getting him to sit up, even though it's painful with his stomach. This will then allow him to make some further progression towards eating food and getting that slurpee that he wants so badly!!

As you can see, there is a lot to pray for here. We need doctors that will communicate the full plan. We need Michelle and Tyler to feel comfortable here and be able to trust these doctors. We need Tyler's pain to be under control. We need to hear a plan for the cancer treatment. We need for Michelle and Tyler to have renewed strength to keep fighting and not grow weary and hopeless.

Love you all! Thank you for partnering with us on this journey!